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홍차넷
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티타임
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- 다양한 주제에 대해 자유롭게 글을 작성하는 게시판입니다.
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전체기타일상/생각꿀팁/강좌방송/연예도서/문학영화의료/건강문화/예술경제생활체육과학/기술철학/종교정치요리/음식역사여행육아/가정IT/컴퓨터음악창작게임스포츠사회오프모임
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| Date |
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| Name | 꾸니꾸니 |
| Link #1 | https://storyfunding.kakao.com/episode/45408 |
| Subject | 뇌종양에 노래가 도움될까요 |
|
사연이야 누구나 있겠습니다만 저는 좀 어렵게 자란 편입니다. 아버지가 편찮으셔서 10대 때부터 가장 노릇을 해야 했어요. 남들 다 가는 대학은 근처도 못 가 보고 내내 일만 했는데도 생활비조차 빠듯한 형편이었습니다. 딱히 기술도 없고 배움도 짧다보니 돈을 많이 받는 일은 못했던 것 같습니다. 집 안에 아픈 사람이 있다는 건 정말 힘들고 마음 아린 일입니다. 편부슬하의 외동아들로 자라 뇌경색을 앓으시는 아버지를 모시고 단 둘이 사는 게 좀 더 힘들었던 것 같습니다. 나중에 두번째 뇌경색이 와서 병원에서 반년정도 병수발을 하고 대소변을 받아냈습니다. 그 때 제 이름은 보호자님이었는데 내가 무슨 힘이 있다고 보호를 할 수 있는 걸까 싶었더랬죠. 매일 밤 잠들기 전에 내일 아침엔 내 숨이 끊어져 있게 해달라고 신에게 기도했던 시절입니다.
방법을 모르기도 했구요. 그냥 눈 앞에 닥친 현실을 버텨내기 급급했던 것 같아요.
한번은 전기요금을 못 내 끊길 판이었는데 동사무소 사회복지과에서 어떻게 알았는지 사회복지협의회를 통해 전기요금을 지원해 주기도 했었어요. 그 이후로 종종 쌀도 한 포대씩 갖다 주곤 했습니다. 나중엔 아버지 병원비도 지원받았습니다. 어찌나 고맙던지요. 그땐 어린 마음에 우리나라 참 좋은 나라네.. 나도 빨리 돈 많이 벌어서 세금도 많이 내고(?), 기부도 많이 하고 그랬으면 좋겠다고 생각했었습니다. - 밥벌이도 하는 것 같이 하고 그나마 사람 구실하며 살고 있습니다. 작게 나마 기부도 하고 노래로 봉사하는 합창단에 참여도 하고 있습니다. 늘 도움만 받고 살았는데 조금이나마 도움의 손길을 내밀 수 있는 삶을 산다는 게 낯설기도 하고 감사하기도 하고 그렇습니다. (지난 어린이날에 소아암 병동에 봉사 다녀온 영상입니다.) 호스피스, 소아암 병동에 가서 음악으로 환우들과 함께 하고, 매해 정기 공연을 열어서 모은 공연수익금은 소아암 환아 치료비로 전달하는 활동을 하고 있습니다. 올해는 뇌종양을 앓고 있는 11살 아이를 후원하는 공연을 엽니다. 삼남매의 다복한 가정이었는데 수모세포종 진단을 받고 투병 생활을 하면서 많이 힘들어졌다고 합니다. 워낙 치명적인 질병이고 치료 기간도 오래 걸리는데다 치료비도 무척 많이 들다 보니 아이와 아이 부모님께서 너무나 힘들어하십니다. - 이번 공연은 스토리 펀딩을 통해서 알리게 되었습니다. 그 과정에서 고마운 기업의 대표님들을 만나 아무 조건 없이 귀한 제품도 제공받았습니다. 공연티켓과 제품을 묶어 스토리 펀딩의 리워드로 준비했습니다. 특히 로션이랑 바디워시는 특히 저같은 아재가 쓰기에도 참 고급지고 좋았습니다. 제가 생긴 것답지 않게 피부가 섬세(?)한터라 아무거나 잘 못 쓰는 편인데 유아용으로 개발된 제품이라 무척 순합니다. 건성피부라 요즘 같은 날씨에 허옇게 일어나는 편인데 유분기 없이도 보습이 정말 좋아서 걱정이 없습니다. 10월 6일 토요일 5시에 영등포 아트홀에서 공연을 엽니다. 유명한 대중음악들을 합창곡으로 편곡해 30명의 단원들이 무대에 섭니다. 이 날 단 하루를 위해 지난 봄부터 매주 모여 연습해 왔습니다. 협연을 위해 실력있는 연주자들도 초빙했습니다. 좋은 분들과 함께 공연 보러 오셔서 즐거운 주말 보내주세요. 환아와 환아 가정에는 큰 힘과 기쁨이 될 겁니다.
다음 스토리펀딩 - 노래보다 더 즐거운 노래를 만나다 https://storyfunding.kakao.com/episode/45408 (공연티켓과 제품을 구매하실 수 있는 링크입니다.) Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view.php on line 133 Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view.php on line 146 Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view.php on line 161 25
이 게시판에 등록된 꾸니꾸니님의 최근 게시물 |
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114809 class="iamcmt" style="display:none;"> Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 66
114809 class='vcm '>
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Warning: Use of undefined constant ismember - assumed 'ismember' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 121
114809'> Toby
Warning: Use of undefined constant mod_date - assumed 'mod_date' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 133
Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 140
Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 140
Warning: Use of undefined constant reg_date - assumed 'reg_date' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 142
18/09/13 16:24
114809>삭제 주소복사
Warning: Use of undefined constant level - assumed 'level' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 150
의미있는 일이네요. 펀딩이 잘 되어 잘 진행되면 좋겠습니다.
Warning: Use of undefined constant level - assumed 'level' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 158
Warning: Use of undefined constant password - assumed 'password' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 166
Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 171
Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 172
Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 173
Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 173
Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 173
1
Warning: Use of undefined constant level - assumed 'level' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 158
Warning: Use of undefined constant password - assumed 'password' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 166
Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 171
Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 172
Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 173
Warning: Use of undefined constant no - assumed 'no' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 173
Warning: Use of undefined constant vote - assumed 'vote' (this will throw an Error in a future version of PHP) in /home/redtea/html/a_skin/bbsd/view_comment.php on line 173
1
114809>
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